I read this from the perspective of a parent; our (now 8 & Cancer-Free) 5-yr-old son had Medulloblastoma. So many complications have left him disabled and even though he can’t speak he liked the Poop one; it’s a boy thing! During one drain tube removal & a placement of a new one (in the PICU) I explained to his Neurosurgeon he was no longer allowed to be his barber (27)! Tumors SUCK, but Laughter is the best medicine! Thanks for the laughs; us parents need medicine too; preferably during MRI’s (which he’s sedated for; so there’s no crawling in an outage, just snoring)!!
Hello Cherie Taylor,
what a beautiful name, it is my middle child’s name just vice verse ( Taylor Cherie). I too had a Menginoma Brain tumor but it was in Dec. 2008 and had it removed on the 12th. I remember in October at work feeling so bad with this terrible headache that just would not go away, I just could not deal with it any longer so I had to make a doc appt. and they told me to come in. I was told I had an upper respiratory infection and a sinus infection, so they gave me this 7 day dose pak to take. It worked and I was like my problem was gone. Until I completed it, then the pain came back worse than before. I had to go back so he was like I am going to send you to an ENT, ( at this time I had this buzzing sound in my ear that would not go away). I went the next day and they found out I had hearing loss in my left ear so for some reason they wanted to send me to get an MRI of my brain to check things out to make sure all is well. I didn’t think nothing of that, just thought maybe this is a serious sinus infection.
Well did the MRI, A day later the ENT office called around 3:30 pm and asked could I come into the office for my results.. I was like ” I can not just get off work like that and I already took my lunch for today and I get off in an hour” they said we close at 5 and the doctor said they would stay until you get here. ” I was like what is going on with those results”
We know these braces are uncomfortable, but unfortunately they need to be worn when out of bed. Basically wherever you go, the brace must follow you there. The only time the brace may be removed during the day is to clean and dry your incision site. This is necessary to decrease the risk of infection. You may exercise, but start slow and gradually increase your activity. During your first week post-operatively, do not sit for more than 10 minutes at a time. Sitting puts more pressure on your back than does standing or walking. After your first office visit, you may increase your sitting time.